DONATIONS SHALL BE USED FOR:

  • Scientific Symposiums – to improve scientific knowledge about the Phelan-McDermid Syndrome and the SHANK3 gene and to promote collaboration among scientists.
  • Scientific Research Subsidies and Grants – to accelerate the development of effective therapies through scientific research.
  • International bio-bank and clinical data registry – to build resources to stimulate and maintain research interests into the syndrome.
  • International Conference – to enable families and researchers to get together every two years to learn more about the Syndrome.
  • Coordinate support for families around the world via dissemination and awareness-raising activities.

How would you like to collaborate with us?

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We will keep you informed of the Phelan-McDermid Association’s new advancements, knowledge, news and activities.

Don’t hesitate, join now!

Your support is essential in order to improve the quality of life of those affected by the Phelan-McDermid Syndrome and that of their carers.

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I would like to receive regular information about how the Association works

Method of payment (Membership fee €50 quarterly)

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You can transfer your donation to the bank account of the Phelan McDermid Syndrome Association
BBVS Current Account No.: ES36 0182 6058 2402 0152 4038

You do not have to become a member to make a donation.

You can make a donation right now!

Your support is essential in order to improve the quality of life of those affected by the Phelan-McDermid Syndrome and that of their carers.

Personal Details (or company details)

I would like to receive regular information about how the Association works

Donation to the Phelan-McDermid Syndrome Association

Method of payment

Pay with
You will be redirected to PayPal so you can make the payment once your press the 'send' button.

Pay with
You will be redirected to luPay so you can make the payment once your press the 'send' button.

Payment with credit card


Direct debit


Bank transfer (indicating name, surname, email and item)
You can transfer your donation to the bank account of the Phelan McDermid Syndrome Association
BBVS Current Account No.: ES36 0182 6058 2402 0152 4038

You can also help us by collaborating physically or materially in our events.

Do you fancy helping us out? Become a volunteer!

Phelan-McDermid Association Follower

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Areas of interest

LEGAL NOTICE: In compliance with Organic Law 15/1999 on the protection of Personal Data and Royal Decree 1720/2007 implementing the regulations of the Data Protection Act, we hereby inform you that your data have been included in a file owned by Asociacion Síndrome Phelan-McDermid. If you would like to exercise your right to access, rectify, cancel or oppose, you may do so by sending a request in writing to Asociacion Síndrome Phelan-McDermid, C/ Condesa de Chinchón, 11 Bloque 6 Bajo A Bodilla del Monte 28660 Madrid or via email to info@22q13.org.es together with valid proof of the right, a copy of your ID and indicating “DATA PROTECTION”.