Raras pero no invisibles.

http://www.rarasperonoinvisibles.com/?p=93

Fundación americana Phelan McDermid.

http://22q13.org

Asociación italiana Phelan McDermid.

http://aisphem.org/index.php/it/

DRAVET. Fundación síndrome de Dravet.

http://www.dravetfoundation.eu/es/

FAMMA. Federación de asociaciones de personas con discapacidad física y orgánica de la Comunidad de Madrid.

http://www.famma.org/

FEDER. Federación Española De Enfermedades Raras.

http://www.enfermedades-raras.org/

CIBERER. Centro de Investigación Biomédica En Red de Enfermedades Raras.

http://www.ciberer.es/

Autismo Madrid.

http://www.autismomadrid.es/ http://www.autismomadrid.es/?s=phelan+mcdermid

Hospital Mount Sinai.

http://icahn.mssm.edu/search?q=phelan+mcdermid&output=xml_no_dtd&client=my_frontend2&proxystylesheet=my_frontend2&sort=date%3AD%3AL%3Ad1&entqr=3&oe=UTF-8&ie=UTF-8&ud=1&site=prod-mssm&filter=0

Icahn School Of Medicine At Mount Sinai.

http://www.shank3gene.org/ http://www.shank3gene.org/2013/03/27/pms-meeting-in-madrid-on-april-30-2013/

IMSERM. Institut National de la Santé et de la recherché médicale.

http://www.inserm.fr/

IdiPAZ. Instituto de Investigación Hospital Universitario La Paz.

http://www.idipaz.es/DefaultES.aspx

Hospital La Paz.

http://www.madrid.org/cs/Satellite?cid=1354198537105&language=es&pageid=1159444389315&pagename=PortalSalud%2FCM_Actualidad_FA%2FPTSA_pintarActualidad&vest=1159444389315

El Economista

www.eleconomista.es http://ecodiario.eleconomista.es/noticias/noticias/4790411/04/13/Conoce-las-claves-del-sindrome-de-PhelanMcDermid.html

Leeme Libros

http://www.leemelibros.com

Yahoo-English

http://health.groups.yahoo.com/group/22q13/

Yahoo- French

http://health.groups.yahoo.com/group/22q13Francais/

Facebook-English

https://www.facebook.com/groups/22Q13PMS/

Facebook-Spanish

https://www.facebook.com/groups/263402830401152/

Facebook-French

https://www.facebook.com/groups/PMS22q13.FR/

Facebook-German

https://www.facebook.com/groups/113959178655020/

Facebook-Scandinavia

https://www.facebook.com/groups/283842441683241/?fref=ts

Facebook-Netherland

https://www.facebook.com/groups/352154061529074/

Facebook-Poland

https://www.facebook.com/groups/pms.poland/

Facebook-Brazil

https://www.facebook.com/groups/544830615583402

Facebook-Italian Association

https://www.facebook.com/pages/Associazione-Italiana-Sindrome-di-Phelan-McDermid/481171518584067

Facebook-French Association

https://www.facebook.com/LauraDePhelanMcDermid

Website – Italian Association

http://www.aisphem.org/

Facebook – Sibling Page (For those who have a sibling with PMS)

https://www.facebook.com/groups/235641426511010/

Website – French Association

http://www.lauradephelanmcdermid.com/

Website – Spanish Association

http://www.22q13.org.es/

Website – French

http://lemondedecamille.free.fr/

Website

todossomosraros.es

Website

somospacientes.com