Contacto

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NUESTRA MISIÓN

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La Asociación del Síndrome de Phelan-McDermid existe para mejorar la calidad de vida de las personas afectadas por el Síndrome mediante la aceleración de la investigación,
el apoyo a las familias y la sensibilización.

A través de nuestra organización en España, pretendemos ayudar a las familias españolas, proporcionar toda la información y los recursos que se han podido conseguir hasta el momento y fomentar la cooperación de las familias que conforman esta Delegación, además de buscar vías de financiación que permitan continuar con el progreso de la investigación.

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JUNTA DIRECTIVA

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[dfd_info_box custom_fonts=»font_family:Dosis%3A200%2C300%2Cregular%2C500%2C600%2C700%2C800|font_style:500%20bold%20regular%3A500%3Anormal» style=»style-01″ layout=»layout-01″ title=»PRESIDENTA» subtitle=»NORMA ALHAMBRA» title_font_options=»tag:div» use_google_fonts=»yes» subtitle_font_options=»tag:div» font_options=»tag:div»]+34 620 178 017[/dfd_info_box]
[dfd_info_box custom_fonts=»font_family:Dosis%3A200%2C300%2Cregular%2C500%2C600%2C700%2C800|font_style:500%20bold%20regular%3A500%3Anormal» style=»style-01″ layout=»layout-01″ title=»VICEPRESIDENTA» subtitle=»SARA SIERRA» title_font_options=»tag:div» use_google_fonts=»yes» subtitle_font_options=»tag:div» font_options=»tag:div»]Tlf.: +34 680 900 426[/dfd_info_box]
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[dfd_info_box custom_fonts=»font_family:Dosis%3A200%2C300%2Cregular%2C500%2C600%2C700%2C800|font_style:500%20bold%20regular%3A500%3Anormal» style=»style-01″ layout=»layout-01″ title=»SECRETARIA» subtitle=»MANUELA ROY» title_font_options=»tag:div» use_google_fonts=»yes» subtitle_font_options=»tag:div» font_options=»tag:div»]Tlf.: +34 679 766 492[/dfd_info_box]
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DELEGADOS DE ZONA

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OTRAS DELEGACIONES EUROPA / HISPANOAMÉRICA

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