Actualidad

Foro Autonómico sobre enfermedades raras y sin diagnóstico

25 noviembre 2024

El sábado 23 de noviembre, en el Aula Ortiz Vázquez del Hospital Universitario de la Paz, tuvo lugar el Foro Autonómico de Enfermedades Raras y Sin Diagnóstico en Madrid, con la participación de Mónica Rodríguez, la secretaria de FEDER.

Nuestra entidad estuvo presente en el acto a través de Constance Colin, Coordinadora de nuestra Asociación. El foro abordó cuestiones tan relevantes para el colectivo de enfermedades raras como son los Centros Servicios y Unidades de Referencia (CSUR), la Redes Europeas de Referencia (ERNs) y las unidades de experiencia, a través de una mesa de expertos con distintos médicos especialistas.

Eventos

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Calendario eventos

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